Blog

Highlighting stories from the world of Autism

“AspergerWorld : My Fairy Jam Jar”

“AspergerWorld : My Fairy Jam Jar” A new Book by Award Winning Disabled Autism Activist available for Pre-Order. ‘One Woman, One Wish, One Inspiring Story… Be Enchanted by Personal and Professional Insights into AspergerWorld.’   My name is Joely Colmer. I am a Multi National and World Award Winning Autism Activist, Motivational Speaker, Author, and I have a gift. My gift enables me to experience the rich, vibrant tapestry of life, in all its glorious detail. You see, my gift walks hand in hand with my greatest difficulties, challenging me every second of every day, and embraces together with the very things I love most about myself; empowering me with my biggest passions in life. You see, my disability is my gift; my gift is Aspergers Syndrome. Welcome to “AspergerWorld : My Fairy Jam Jar”; a book penned from my rare professional and personal perspective. Here, I am a Fairy, living within a diverse, and rather quaint, Jam Jar. I live here shaded from view, often overlooked; Witnessing the world from a different angle, deaf to certain language and happily powerless to escape. Within my Jam Jar, I am here embracing my disabled wings, to answer your wishes, and gift you with rare personal insights, to challenge negative perceptions. Can you feel that? The glistening of Fairy Dust as it settles upon your skin, granting your wishes, inspiring positivity within your mind? Go on, pre order my book, and take a creative peek into the untold world of Autism, embrace the Fairy Dust; and discover all about Life A.S. We See It, for only £9.99. My disability has many...

It is with great sadness…..

It is with genuine regret that Shammi Kapoor will not be attending the AKO Expo which is taking place on Saturday 11th March, 2017 at Brunel University. Shammi is a young man who has been diagnosed as having an ASD and also ADHD who has also suffered from depression; he was scheduled to speak about a therapeutic approach which he claims has been extremely valuable to him. When inviting Shammi to speak at the Expo, the motivation of the charity was to give a person diagnosed with autism a platform to share their ideas whilst at the same time encouraging people to evaluate any claims made calmly, respectfully, reasonably and objectively. Despite making it clear that AKO neither supports nor refutes the approach preferred by Shammi, a number of individuals have been very assiduous in their opposition to him being a speaker. It is noted with regret that many of the said protestations have what can reasonably be described as an unfortunate and unpleasant tone. Whilst no formal written, evidence based objections have be made to the charity regarding Shammi, concerns were heightened considerably when the charity was informed verbally by one of the agitants, a Ms Fiona O’Leary, that demonstrators would protest at the conference if Shammi was allowed to speak. Subsequent investigations found that Ms O’Leary’s promise of direct action had been repeated elsewhere and this raises many possible risks not just for the charity but also for the attendees, a significant number who whom will be children who, like Shammi, also have an ASD. The charity is very aware that, having organised the Expo, it must...

But what about you?

Written by Text by Lee Payton Is a question we rarely hear on Planet Care. Unexpected life-changes come to us: ready, or not. Too often parents are caught up in: ‘the fights’ that can arise between them and schools, local authorities, health providers and against perceptions and prejudices which we can only hope may be history one day. Exhausting, isn’t it? But couldn’t the battlefield be made more level with some kind of armour? Couldn’t you use some superpowers you may not know you have?   The map doesn’t necessarily need to be the territory. Of course there are the very real practicalities of living with, and caring for, someone with special needs or learning challenges. But there is also the mental health and wellbeing of parents, siblings and care-givers. What may be useful for you in your on-going quest: might be some techniques which could help support change. A reframe of where you’re at. A recalibration of what you hope to see and how you’d like things to feel. Reminders of the good things which can light up our lives, if we remember not to forget them: the gifts life gives you if you choose to let yourself see them.   What would be the difference you would like to see in you? How much more equipped would you honestly feel you would like to be, to continue the journey? These are the kinds of conversations Cognitive Hypnotherapists have with a range of individuals and couples. A different kind of conversation.   Cognitive Hypnotherapy is a modern evidence based brief therapy, incorporating Behavioural Psychology and Neuroscience with Traditional...

Home Education, my story

Written by Rachel Tenacious When Tally first asked me to do a list of pros and cons of home ed I thought well that’s easy, there wont be any cons! When we removed H from school she was the lowest I have ever seen her, she was unable to attend most days and even on a good day she was barely coping with getting through the day. She had stopped attending all but one of her after school activities and even the one she was attending she needed to have a sleep before she could go. She was in a desperate state and rapidly shutting down. We knew we couldn’t continue but we didn’t know what the solution was for us. Then on the 2nd June 2015 we said enough we can’t do this anymore and we stopped sending her to school. Initially we signed her off day by day by texting the school each morning to say she was too anxious to attend. This continued for the rest of the summer term. We had one meeting with the school at the end of June but they were still in denial that H had any problems. The SENCO even said in that meeting that she still didn’t believe that H needed any 1:1 support despite the local authority having produced a draft statement stating that she was to receive 17.5 hours of 1:1! H in the meantime was already showing signs of recovery. She started going back to her evening kayaking club and her scout band. She slept late and had lots of rest times in the day. In those...

A Support and social group dedicated to fathers of children with a disability or special needs

Written by Kevin Bugler      but all three are individual in their ASD and Personalities, but all have similar personalities and traits as myself. Marosh was born June 2nd 2010, I was diagnosed with Nasal Pharynx Cancer in Feb/March 2011 and at the same time, my Wife was Pregnant with Samuel who was born August 31st, 2011. In May I had a neck dissection surgery followed by six weeks of Chemo and Radiotherapy which ended in mid-August 2011 (just before Samuels Birth). Happily I am now 5 years clear of Cancer since August 2016 but I am yet to be discharged by my Oncologist as I have breathing difficulties. I am having continuous tests, but so far I have been diagnosed with Asthma and Emphysema but with inhalers, nothing has improved, and in fact, it has got worse, so I am due to go to a respiratory hospital in March this year after I see my Oncologist in February. Marosh was diagnosed in August 2013 and Samuel was diagnosed 1 year later in August 2014. To be honest with Marosh in his early years it was good for me and my recovery that he was in his own little world either bouncing in his Tigger bouncer for hours or running around in circles so I allowed it to happen so I could relax more and deal with my health issues. I went back to work earlier than my Oncologist wanted me to which was October 2011 (I was advised to recover for up to 2 years) as I love to work and I wanted to get out of...

The Core Features of Autism

Written by Elisa Ferriggi Think Autism offers individual and tailored programs for families who are dealing with autism every day and parent workshops on various autism-related topics to provide parents with further understanding of their child and practical ideas to implement. Think Autism also offers professional training for schools, residential homes, and other front line staff interacting with those with autism to help them feel competent as a guide and importantly to focus on approaches that really make a difference to the child’s quality of life. Elisa Ferriggi, consultant and director of Think Autism began in the field of autism in June 2003 where she worked intensively with children on the autism spectrum and then went on to train in a naturally nurturing developmental approach that she continues to offer today. “I started my journey with RDI® (Relationship Development Intervention) in 2005 and quickly discovered that RDI® made sense and was a wonderful way to help not only the individual (child or adult) with autism but also help the parents feel competent and encourage full healthy family inclusion.  I have seen some amazing progress in children, and families are just delighted with the results that they once couldn’t even dream of!” RDI® is a family centered parent approach and the goal is to improve quality of life for the individual with autism and the whole family. This is a big goal and through RDI®, very achievable, I see it every day.  As a consultant it is my role to guide parents and family members in a variety of approaches that will be suitable for their child and their family...

I DREAM OF AN AUTISM FRIENDLY RESTAURANT

I love eating; even more, I love cooking. And I love the fact that I get to work in the autism field. And I love miniature things. I am also a serial fantasiser – you know, for ever thinking up ‘what if…’ scenarios; the other day I was fantasising about how I could combine some of my special interests – i.e. cooking, autism, and miniatures, and came up with the idea of a new Blog post… I know that there are plenty of individuals and families for whom eating out is either not an option, or is such an industrial sized planning operation that it hardly seems worth it in the end; plus all the variables that can’t be controlled, such as: the sudden appearance of a baby crying; a plate breaking in the kitchen; bread being offered all piled up in a basket and not set out separately without touching; food being served on a texturally inappropriate surface (were humans ever meant to eat off slate?); the waitress wearing the ‘wrong’ perfume; the two clocks on display showing different times; the electric socket switch being turned on despite there being nothing plugged in; the noise of the air-con being painful; background ‘chatter’ becoming overwhelming; people scraping their chairs on the floor when they get up or sit down; being greeted by an unanswerable question such as ‘so how does tonight find you?’ not being able to sit tucked away in the corner; grammatical errors on the ‘specials’ board (what makes the meals on the board so special anyway?); the ketchup in the Heinz bottle clearly not the correct...

AKO Autism Expo returns in 2017!!

After a hugely successful first year, AKO Autism Expo returns on the 11th March 2017. Brunel University turned out to be a great venue, so we’re back again with outstanding speakers, fabulous exhibitors, art exhibition and our very popular clinics.   Sadly last year we had a few issues with our food court……Not in 2017. We have a lot of surprises in store. Get your tickets today by clicking on this link.   If you have any questions, please give me a call or send me a message and I’ll get back to you as soon as I can. Looking forward to seeing you there xx   Tally AKO Expo Event Manager...

  This is our wonderful team at Brunel working hard behind the scenes to make this a fantastic event. We are so proud to be exhibiting at Brunel. Free parking and easily accessible by public transport. Accommodation on the campus hotel is available upon request.   Book your ticket here Book early and don’t miss out on a £5 discount! Contact Tally for  GROUP DISCOUNT tally.nothey@gmail.com Book your tickets...